Skip to content
Home
Diabetes
Parkinson’s
Alopecia Areata
ALS
Testimonials
More...
Diabetes Treatment Details
Telemedicine Consultation Forms
Type 1 Diabetes – Adult
Type 1 Diabetes – Child
Parkinson’s Disease
Amyotrophic Lateral Sclerosis (ALS)
Post-COVID-19 Syndrome
Alzheimer’s Disease
Contact
Navigation Menu
Navigation Menu
Home
Diabetes
Parkinson’s
Alopecia Areata
ALS
Testimonials
More...
Diabetes Treatment Details
Telemedicine Consultation Forms
Type 1 Diabetes – Adult
Type 1 Diabetes – Child
Parkinson’s Disease
Amyotrophic Lateral Sclerosis (ALS)
Post-COVID-19 Syndrome
Alzheimer’s Disease
Contact
Follow-Up Form
Amyotrophic Lateral Sclerosis (ALS)
Follow-up Form - ALS
Your First Name
*
Your Last Name
*
Your Address
*
Your Address
Your Address
Your Address
City
City
State/Province
State/Province
Zip/Postal
Zip/Postal
Country
Afghanistan
Aland Islands
Albania
Algeria
American Samoa
Andorra
Angola
Anguilla
Antarctica
Antigua and Barbuda
Argentina
Armenia
Aruba
Australia
Austria
Azerbaijan
Bahamas
Bahrain
Bangladesh
Barbados
Belarus
Belgium
Belize
Benin
Bermuda
Bhutan
Bolivia
Bonaire, Sint Eustatius and Saba
Bosnia and Herzegovina
Botswana
Bouvet Island
Brazil
British Indian Ocean Territory
Brunei
Bulgaria
Burkina Faso
Burundi
Côte d'Ivoire
Cambodia
Cameroon
Canada
Cape Verde
Cayman Islands
Central African Republic
Chad
Chile
China
Christmas Island
Cocos (Keeling) Islands
Colombia
Comoros
Congo
Cook Islands
Costa Rica
Croatia
Cuba
Curacao
Cyprus
Czech Republic
Denmark
Djibouti
Dominica
Dominican Republic
East Timor
Ecuador
Egypt
El Salvador
Equatorial Guinea
Eritrea
Estonia
Ethiopia
Falkland Islands (Malvinas)
Faroe Islands
Fiji
Finland
France
French Guiana
French Polynesia
French Southern Territories
Gabon
Gambia
Georgia
Germany
Ghana
Gibraltar
Greece
Greenland
Grenada
Guadeloupe
Guam
Guatemala
Guernsey
Guinea
Guinea-Bissau
Guyana
Haiti
Heard Island and McDonald Islands
Holy See
Honduras
Hong Kong
Hungary
Iceland
India
Indonesia
Iran
Iraq
Ireland
Isle of Man
Israel
Italy
Jamaica
Japan
Jersey
Jordan
Kazakhstan
Kenya
Kiribati
Kosovo
Kuwait
Kyrgyzstan
Laos
Latvia
Lebanon
Lesotho
Liberia
Libya
Liechtenstein
Lithuania
Luxembourg
Macao
Macedonia
Madagascar
Malawi
Malaysia
Maldives
Mali
Malta
Marshall Islands
Martinique
Mauritania
Mauritius
Mayotte
Mexico
Micronesia
Moldova
Monaco
Mongolia
Montenegro
Montserrat
Morocco
Mozambique
Myanmar
Namibia
Nauru
Nepal
Netherlands
New Caledonia
New Zealand
Nicaragua
Niger
Nigeria
Niue
Norfolk Island
North Korea
Northern Mariana Islands
Norway
Oman
Pakistan
Palau
Palestine
Panama
Papua New Guinea
Paraguay
Peru
Philippines
Pitcairn
Poland
Portugal
Puerto Rico
Qatar
Reunion
Romania
Russia
Rwanda
Saint Barthelemy
Saint Helena, Ascension and Tristan da Cunha
Saint Kitts and Nevis
Saint Lucia
Saint Martin (French part)
Saint Pierre and Miquelon
Saint Vincent and the Grenadines
Samoa
San Marino
Sao Tome and Principe
Saudi Arabia
Senegal
Serbia
Seychelles
Sierra Leone
Singapore
Sint Maarten (Dutch part)
Slovakia
Slovenia
Solomon Islands
Somalia
South Africa
South Georgia and the South Sandwich Islands
South Korea
South Sudan
Spain
Sri Lanka
Sudan
Suriname
Svalbard and Jan Mayen
Swaziland
Sweden
Switzerland
Syria
Taiwan
Tajikistan
Tanzania
Thailand
Timor-Leste
Togo
Tokelau
Tonga
Trinidad and Tobago
Tunisia
Turkey
Turkmenistan
Turks and Caicos Islands
Tuvalu
Uganda
Ukraine
United Arab Emirates
United Kingdom
United States
United States Minor Outlying Islands
Uruguay
Uzbekistan
Vanuatu
Vatican City
Venezuela
Vietnam
Virgin Islands, British
Virgin Islands, U.S.
Wallis and Futuna
Western Sahara
Yemen
Zambia
Zimbabwe
Country
Your Address
"
Your Phone
*
";s:6:"m
Your email address
*
Today's Date
*
"
Your Birth Date
*
";s:6:"m
Your Age In Years
File Name
Sex
*
Male
Female
What was your usual weight, in pounds, before the onset of your autoimmune condition?
Your Weight (in pounds)
*
Your Height in Feet
*
And Inches
*
How many months has it been since your initial stem cell educator treatment?
*
List All Medications That You Take For Your ALS, Enter "None" If None
*
Do You Have Any Of These Other Autoimmune Disorders? Check All That Apply.
*
Adrenal Insufficiency / Addison's Disease
Alopecia Areata
Autism
Autoimmune Hepatitis
Celiac Disease / Gluten-Sensitive Enteropathy
Crohn's Disease
Dermatoid Arthritis
Dermatomyositis
Grave's Disease / Hyperthyroidism
Guillain–Barré
Hashimoto's Disease / Hypothyroidism
Lupus
Myasthenia gravis
Multiple Sclerosis
Pernicious anemia
Psoriasis / Psoriatic Arthritis
Rheumatoid Arthritis / Idiopathic Arthritis
Scleroderma
Sjögren syndrome
Type 1 Diabetes
Type 2 Diabetes
Transverse Myelitis
Other (list below)
None Of The Above
List any other autoimmune conditions that you believe that you have.
Enter The Name, Address, Phone Number, And Email Address Of The Doctor And/Or Clinic That Provides Your ALS Care, Enter "None" If None.
*
Are You Employed At This Time?
*
Yes, Full Time (Greater Than 30 Hours Per Week)
Yes, Part Time (Between 20 and 30 Hours Per Week)
Yes, Part Time Less Than 20 Hours Per Week)
Retired
Disabled, Unable To Work
Not Retired But Not Working At This Time
Do You Have Or Need A Caretaker And, If So, Who Supplies That Care?
*
I can function independently
I live with a family member or friend who provides caretaking services for me
Someone comes to my home to provide caretaking services for four or less hours per day
Someone comes to my home to provide caretaking services for eight or less hours per day
Someone comes to my home to provide caretaking services for twelve or less hours per day
One or more caretakers come to my home to provide caretaking services 24/7
I live in a care facility and that care facility provides my caretaking services
List All Other Chronic Illnesses Or Disorders (enter "None" If none)
*
List All Medications That You Take For Any Reason Other Than ALS, If None, Enter "None."
*
List All Allergies To Any Drugs Or Anything Else. Enter "None" If None.
*
ALS Specific Questions
For how many years have you had symptoms of ALS
Less than one
One to two years
Two to three years
Three to four years
Four to five years
Five to six years
More than six years
Speech
*
Normal
Detectable speech disturbance
Intelligible with repeating
Speech combined with nonvocal communications
Loss of useful speech
Revised Amyotrophic Lateral Sclerosis Functional Rating Scale (ALSFRS-R)
Salivation
*
Normal
Slight but definite excess of saliva in mouth; may have nighttime drooling
Moderately excessive saliva; may have minimal drooling
Marked excess of saliva with some drooling
Marked drooling; requires constant tissue or handkerchief
Swallowing
*
Normal eating habits
Early eating problems; occasional choking
Dietary consistency changes
Needs supplemental tube feedings
Nothing by mouth; exclusively parenteral or enteral feeding
Handwriting
*
Normal
Slow or sloppy; all words are legible
Not all words are legible
Able to grip pen but unable to write
Unable to grip pen
Does the patient have a gastrostomy and take >50% daily nutrition intake via G-tube?
*
Yes
No
Cutting food and handling utensils
*
Normal
Somewhat slow and clumsy but no help needed
Can cut most foods although clumsy and slow; some help needed
Food must be cut by someone but can still feed slowly
Needs to be fed
Dressing and hygiene
*
Normal function
Independent and complete self-care with effort or decreased efficiency
Intermittent assistance or substitute methods
Needs attendant for self-care
Total dependence
Turning in bed and adjusting bed clothes
*
Normal
Somewhat slow and clumsy but no help needed
Can turn alone or adjust sheets but with great difficulty
Can initiate but not turn or adjust sheets alone
Helpless
Walking
*
Normal
Early ambulation difficulties
Walks with assistance
Nonambulatory functional movement
No purposeful leg movement
Climbing stairs
*
Normal
Slow
Mild unsteadiness or fatigue
Needs assistance
Cannot do
Dyspnea (shortness of breath)
*
None
Occurs when walking
Occurs with one or more of the following: eating, bathing, dressing
Occurs at rest, difficulty breathing when either sitting or lying
Significant difficulty, considering using mechanical respiratory support
Orthopnea (can't breathe lying flat, have to sit up to breathe)
*
None
Some difficulty sleeping at night due to shortness of breath; does not routinely use >2 pillows
Needs extra pillows in order to sleep (>2)
Can only sleep sitting up
Unable to sleep
Respiratory insufficiency (can't breathe without a breathing machine)
*
None
Intermittent use of BiPAP
Continuous use of BiPAP during the night
Continuous use of BiPAP during the night and day
Invasive mechanical ventilation by intubation or tracheostomy
If you are using a spirometer to measure your breathing, what is your best recent spirometer reading?
Can you raise your right hand and arm straight up?
*
Yes, even lifting a ten pound hand weight
Yes, even lifting a five pound hand weight
Yes, even lifting a three pound hand weight
Yes, even lifting a one pound hand weight
Yes, but cannot lift any weight
Only half way
I can only lift my right hand up to my shoulder
I cannot lift my right hand up at all
Can you raise your left hand and arm straight up?
*
Yes, even lifting a ten pound hand weight
Yes, even lifting a five pound hand weight
Yes, even lifting a three pound hand weight
Yes, even lifting a one pound hand weight
Yes, but cannot lift any weight
Only half way
I can only lift my left hand up to my shoulder
I cannot lift my left hand up at all
Required HIPPA Privacy Practices Notice: (Follow link below)
*
Yes, I have reviewed the HIPPA Privacy Practices Notice
HIPPA Privacy Practice Notice
Email Communication Authorization:
*
Yes, I give permission for Throne Biotechnology and Its doctors to communicate with me regarding my care by Telephone, Text Message, or Email.
In what ways do you think that your ALS is better or worse now than it was before your stem cell educator therapy?
Submit
If you are human, leave this field blank.